An Everett family is receiving an outpouring of support after their infant daughter was diagnosed with a rare and serious neurological condition.
Friends, family, and neighbors are coming together to support baby Kennedy and her parents, Jamie Brass and Derek Smith, after the infant was diagnosed with infantile spasms and admitted to Seattle Children’s Hospital.
Infantile spasms are a rare type of epilepsy that typically affects babies under one year old. The condition causes sudden, repeated seizures that may look like brief jerking movements, stiffening, or head drops. According to medical experts, these episodes can happen in clusters and are often mistaken for normal baby movements early on.
The disorder is considered a medical emergency because it can impact brain development if not treated quickly. While some children respond well to treatment, others may face long-term developmental challenges.
Kennedy is currently undergoing care as doctors work to manage the condition, according to an online fundraiser.
“Kennedy is a fighter, but this journey is going to be long and challenging,” organizers wrote on a GoFundMe campaign.
Jamie and Derek are expected to spend extended time at the hospital, limiting their ability to work while caring for their daughter. At the same time, they are facing ongoing costs tied to treatment, including medications, doctor visits, and hospital care, as well as everyday expenses like food and travel, organizers said.
The fundraiser states the money will go toward medical bills, co-pays, medication, and costs associated with staying near the hospital during Kennedy’s treatment.
“Jamie and Derek are the kind of people who would do anything for anyone,” organizers said. “Right now, they need our help.”
Those interested in supporting the family can donate via GoFundMe here.
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